Publicaties KLIK

Proefschriften

1. QLIC-ON (2011): Vivian Engelen. Titel: Monitoring Quality of Life in Paediatric Oncology Practice. Promotoren: prof. dr. Huib Caron, co-promotores dr. Martha Grootenhuis, dr. Symone Detmar, dr. Hendrik Koopman.
   https://dare.uva.nl/search?identifier=613fe2f2-f584-4456-815c-96d8f5704de7
2. KLIK (2013): Lotte Haverman. Titel: Electronic patient and parent reported outcomes in pediatric clinical practice. Promotoren: prof. dr. Martha Grootenhuis en prof. dr. Taco Kuijpers, co-promotor: dr. Marion van Rossum.
   https://dare.uva.nl/search?identifier=ddf62957-75e1-4ef0-bdb5-3683de929818
3. IMPROVE (2017): Sasja Schepers. Titel: Changing pediatric cancer care: development and implementation of electronic patient and parent reported outcomes. Promotoren: prof. dr. Martha Grootenhuis en prof. dr. Huib Caron, co-promotor: dr. Chris Verhaak.
   http://dare.uva.nl/search?identifier=18e59179-958e-48ab-a643-5d365e781c34
4. Parent Reported Outcomes (2019): Hedy van Oers. Titel: Parent Reported Outcomes: measure development and implementation in pediatric clinical practice. Promotor: prof. dr. Martha Grootenhuis, co-promotor: dr. Lotte Haverman.
   https://dare.uva.nl/search?identifier=977a919a-ce3b-4682-9b30-7046400fe37d
5. Patient Reported Outcome Measures (2022): Maud van Muilekom. Titel: Patient Reported Outcome Measures in clinical practice: from implementation to optimization. Promotor: prof. dr. Martha Grootenhuis, co-promotors: dr. Lotte Haverman en dr. Hedy van Oers.
   https://dare.uva.nl/search?identifier=7ae25949-0100-4383-96be-f64f2a7f17ba
6. PROMIS (2022): Michiel Luijten. Titel: Standardizing patient-reported outcome measurement in pediatrics: validation & implementation of PROMIS. Promotoren: prof. dr. Caroline Terwee en prof. dr. Martha Grootenhuis, co-promotor: dr. Lotte Haverman. 
   https://dare.uva.nl/search?field1=keyword;value1=Luijten;docsPerPage=1;startDoc=4
7. Patient-centered care (2023): Lorynn Teela. Titel: Including the voice of children. Towards patient-centered care. Promotor: prof. dr. Hans van Goudoever, co-promotors: dr. Lotte Haverman en dr. Hedy van Oers.
   https://dare.uva.nl/search?identifier=bc281993-5a7b-4435-bc01-f632b5e84842

Ontwikkeling

1. Engelen, V., Haverman, L., Koopman, H., Schouten van Meeteren, N., Meijer-van den Bergh, E., Vrijmoet- Wiersma, J., . . . Grootenhuis, M. (2010). Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. Patient Education and Counseling, 81, 235–244. doi: 10.1016/j.pec.2010.02.003
   https://ac.els-cdn.com/S0738399110000297/1-s2.0-S0738399110000297-main.pdf?_tid=2c14f9da-4b47-46b1-aaad-a0d83a1bc521&acdnat=1539767739_e014a462bfb1505a39cf7397332e2a08
2. Haverman, L., Engelen, V., Van Rossum, M.A.J., Heymans, H.S.A., Grootenhuis, M.A. (2011). Monitoring Health Related Quality of Life in Pediatric Practice; The First Experiences With an Innovative Web-Based Application. BMC pediatrics, 11 (3)
   https://bmcpediatr.biomedcentral.com/track/pdf/10.1186/1471-2431-11-3

Effectiviteit

1. Engelen, V., Detmar, S., Koopman, H., Maurice-Stam, H., Caron, H., Hoogerbrugge, P., . . . Grootenhuis, m. (2012). Reporting Health-Related Quality of Life Scores to Physicians During Routine Follow-Up Visits of Pediatric Oncology Patients: Is It Effective? Pediatric Blood Cancer, 58, 766-774. 10. doi: 1002/pbc.23158
   https://onlinelibrary.wiley.com/doi/pdf/10.1002/pbc.23158
2. Haverman, L., Van Rossum, M.A.J., Van Veenendaal, Van den Berg, J.M., Dolman, K.M., Swart, J., Kuijpers, T.W., Grootenhuis, M.A. (2013). Effectiveness of a Web-Based Application to Monitor Health Related Quality of Life. Pediatrics,; 131 (2),
   http://pediatrics.aappublications.org/content/pediatrics/early/2013/01/02/peds.2012-0958.full.pdf
3. Schepers, S.A., Sint Nicolaas, S.M., Haverman, L., Schouten van Meeteren, A.Y.N., Veening, M.A., Caron, H.N., . . . Grootenhuis, M.A. (2016). Real-world implementation of electronic patient-reported outcomes in outpatient pediatric cancer care. Psycho-oncology, doi:10.1002/pon.4242.
   https://onlinelibrary.wiley.com/doi/epdf/10.1002/pon.4242

Implementatie

1. Haverman, L., Van Oers, H.A., Limperg, P., Hijmans, C., Schepers, S.A., Sint Nicolaas, S., . . . Grootenhuis, M.A. (2014). Implementation of electronic patient reported outcomes in pediatric daily clinical practice: the KLIK experience. Clinical Practice in Pediatric Psychology, 2(1), 50-67.
   https://www.researchgate.net/publication/257782978_Implementation_of_electronic_Patient_Reported_Outcomes_in_pediatric_daily_clinical_practice_the_KLIK_experience
2. Schepers, S.A., Engelen, V.E., Haverman, L., Caron, H.N., Hoogerbrugge, P.M., Kaspers, G.J., Egeler, R.M., Grootenhuis, M.A. (2014). Patient reported outcomes in pediatric oncology practice: suggestions for future usage by parents and pediatric oncologists. Pediatric Blood Cancer, 61 (9), 1707-1710. doi: 10.1002/pbc.25034.
   https://onlinelibrary.wiley.com/doi/epdf/10.1002/pbc.25034
3. Maria J. Santana, M.J., Haverman, L., Absolom, K., Takeuchi, E., Feeny, D., Grootenhuis, M., Velikolva, G. (2015). Training clinicians in how to use patient-reported outcome measures in routine clinical practice. Quality of Life Research, 24, 1707–1718. doi:10.1007/s11136-014-0903-5
   https://link.springer.com/content/pdf/10.1007%2Fs11136-014-0903-5.pdf
4. Schepers, S.A., Haverman, L., Zadeh, S., Grootenhuis, M.A., Wiener, L. (2016). Healthcare Professionals’ Preferences and Perceived Barriers for Routine Assessment of Patient-Reported Outcomes in Pediatric Oncology Practice: Moving Toward International Processes of Change. Pediatric Blood Cancer, 00: 1–8. doi: 10.1002/pbc.26135.
   https://onlinelibrary.wiley.com/doi/epdf/10.1002/pbc.26135
5. Haverman, L. & van Oers, H.A., van Muilekom, M.M., Grootenhuis, M.A. (2018). Options for the interpretation of and recommendations for acting on different PROMs in daily clinical practice using KLIK. Medical Care, 57, S52-S58. doi: 10.1097/MLR.0000000000001061
   https://journals.lww.com/lww-medicalcare/fulltext/2019/05001/options_for_the_interpretation_of_and.10.aspx
6. Teela, L., van Muilekom, M.M., Kooij, L.H., Gathier, A.W., van Goudoever, J.B., Grootenhuis, M.A., Haverman, L., van Oers, H.A. (2020). Clinicians' perspective on the implemented KLIK PROM portal in clinical practice. Quality of Life Research. doi: 10.1007/s11136-020-02522-5 https://link.springer.com/content/pdf/10.1007/s11136-020-02522-5.pdf
7. van Oers, H. A., Teela, L., Schepers, S. A., Grootenhuis, M. A., Haverman, L. (2021). A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Science (CFIR). Quality of Life Research. doi: 10.1007/s11136-020-02586-3
   https://link.springer.com/article/10.1007/s11136-020-02586-3
8. van Muilekom, M.M., & Teela, L., van Oers, H.A., van Goudoever, J.B., Grootenhuis, M.A., Haverman, L (2022). Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal. Quality of Life Research. doi: 10.1007/s11136-021-02950
   https://link.springer.com/article/10.1007/s11136-021-02950-x

KLIK & PROMIS 

1. Luijten, M.A.J., Terwee, C.B., van Oers, H.A., Joosten, M.M.H., van den Berg, J.M., Schonenberg-Meinema, D., Dolman, K.M., ten Cate, R., Roorda, L.D., Grootenhuis, M.A., van Rossum, M.A.J., Haverman, L. (2019). Psychometric properties of the pediatric Patient‐Reported Outcomes Measurement Information System (PROMIS®) item banks in a Dutch clinical sample of children with Juvenile Idiopathic Arthritis. Arthritis Care and Research. doi:10.1002/acr.24094                                                                                                                                  https://onlinelibrary.wiley.com/doi/abs/10.1002/acr.24094
2. van Muilekom, M.M., Luijten, M.A.J., van Litsenburg, R.R.L., Grootenhuis, M.A., Terwee, C.B., Haverman, L. (2021). Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Anger Scale in the Dutch general population. Psychological Assessment. doi: 10.1037/pas0001051
   https://psycnet.apa.org/record/2021-61909-001
3. van Muilekom, M. M., Luijten, M. A. J., van Oers, H. A., Terwee, C. B., van Litsenburg, R. R. L., Roorda, L. D., Grootenhuis, M. A., Haverman, L. (2021). From statistics to clinics: the visual feedback of PROMIS® CATs. Journal of Patient Reported Outcomes.  doi: 10.1186/s41687-021-00324-y
   https://link.springer.com/article/10.1186/s41687-021-00324-y
4. Luijten, M. A. J., Haverman, L., van Litsenburg, R. R. L., Roorda, L. D., Grootenhuis, M. A., Terwee, C. B. (2022). Advances in measuring pediatric overall health: the PROMIS® Pediatric Global Health Scale (PGH-7). European Journal of Pediatrics. doi: 10.1007/s00431-022-04408-9
   https://link.springer.com/article/10.1007/s00431-022-04408-9